Behind the Unheard of Disease - Living with Wolfram Syndrome

af Daniel Melehi

Behind the Unheard of Disease - Living with Wolfram Syndrome is a heart-wrenching and uplifting memoir that takes readers on a gripping journey through the eyes of a mother fighting for her child's life. Wolfram Syndrome is a rare and complex neurodegenerative disorder that affects less than one in a million people worldwide. In this inspiring tale, we meet a family who has been thrust into the world of premium medical care, the struggles of extended physical anomalies, and the courage it takes ... (Læs mere)